Necker Island see post further down its arrived in the wrong place!!!Well the knitting book has arrived. Only the wool and needles to go now. Thought I would start with a teeny weeny monster knitted thingy for my young nephew. My family are laughing at me... well I can't play the piano anymore due to the EDS, so have to be able to do 'something' with my hands. I think I shall have to wear my splints for left hand and see how I get on with the right. Its funny what one ends up writing on a blog, banale and boring is the first thing that comes to mind when I dare read my few meagre entries. Can't take my own sweatshirts off by myself but whoever said I can't should have gone on my pain management course.... achievable tasks were the order of the day and if its the only bit of knitting I ever do I am determined to make the weeny knitted monster! If I ever do it I shall post a picture of it here I think. For no other reason than I can look back and rate it as an achievement! Nothing like setting yourself achievable goals,, no changing the world, or fighting for rights for the disabled me, just monster knitting.
Missing Bendy Girl's blogging immensly. (sp)
Its that weird time of year when my sleeping patterns are awry, awake when I should be asleep and vice versa. If I was rich I would spend the winter in sunnier climes. So this is where I start dreaming and actually use this one for pain distraction/visualisation.... have to look at the picture above and imagine though as am utter crap at visualisation! Not the best picture of the island I can't afford to go to but I like the look of the cushions.... Its good for visualisation as I can imagine myself lying comfortably without pain I add on them, having the tacticle connection seems to help. The picture is up there and the writing about it down here humph. note to self, think before you hit that button that sends stuff.
Am also finding myself wondering about life generally, in my forties now I am having a pretty contented time inside my head, I care less about what people think of me, I am happy to just be me. I may be a physical wreck (an advantage of EDS is that no-one can really tell that) until you fall over, or they question you too much about activity outside of the home! I do find myself wondering whether I should cave in and just sit in a wheelchair, now the problem with this is that it would have to be a power one as could not self propel, am slightly concerned that if I do that I will never get out. Can't use sticks, as hands won't allow, can;t use crutches as weight bearing on shoulders like mine is no good, elbows would undoubtedly join in for good measure too. So I carry on - perhaps I should try one day when I am on my own with a shopmobility scooter as it would be nice to get further than one shop without having to say thats me done for the day. Ever supportive husband who is my leaning post and potato masher (the potato masher is a joke between BG and me) so if I refer to my other half as The Potato Masher you will know to whom I refer. However I digress, OH says if we walk any slower when we go out we will be standing still, I am finding that I do not go out alone if I can at all help it, its a dangerous business,, windmill arms when backbending knees lose centre of gravity,, windmill arms is something that EDSers will be familiar with, its a technique developed to try and prevent falling over backward, manic windmill motions in arms can sometimes prevent a very nasty fall. When this happens and knees dislocate at the same time then things go very wrong indeed as hips and is it SI joints join in, followed very often by an ankle that has been put out by the general disturbances and decides to turn and lay the foot sideways but flat on the floor. Actually this is also a photo I could provide but had not thought of taking one whilst actually in that position with all these bodily parts awry. Another advantage I suppose of being extremely hypermobile is possibly having the ability to take a photo whilst in the akimbo position described by the scenario described. So husband is used to giving the impression to the world that actually I am holding myself up when it is actually him, with a technique to die for developed over years of noticing that this is just about to happen often even before i Do. At other times I can say AM GOING and he gets there just in time. To the world we look like any other loving couple... at least thats what his reassuring words tell me. So back to the wheelchair thing,, don't fancy him pushing me about in one, so shall have to ponder on some more on this one. Seriously though it would mean I may get out more.
Well I am off now having once again twittered on about nothing,, also it feels quite selfish just going on about me. I shall have to think about how to post, some witty, little snippets,, I don't like to post about people I know as this is the internet and you never know do you? I could post I suppose on current affairs mmmm if I say credit crunch on here, again apart from then, I will dissappoint myself. For me this space is a CC unch free zone. Somewhere has to be free of it, doesn't it?
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