... snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit.
Tuesday, 19 July 2011
Saturday, 16 July 2011
mmm tasty
Just popped in really to make sure the old place is still here.
I am currently trawling the net looking a holidays we can't afford. Trying to look at the ones we can and look at it as quality time together. Now that we are not bound by school holidays we can go when times are quieter which I like. I have a husband who likes things to stay on schedule, everything the same, he says he needs something to look forward to, so its my job to find the something to look forward to which is a much like home as possible. Whereas I would love to travel abroad. He will win on this one otherwise we wouldn't get to go together. I quite like the idea of a cottage somewhere but then think its all a lot of money to stay somewhere where its all someone elses stuff everywhere. I am not sure on a hotel experience as the ones I like the look of are inordinately expensive. I know we did enjoy the 'glamping' experience last year as it was accessible for me and out doory enough for the other half. I think then to myself humph perhaps its just easier to go on virtual holidays, tonight its been a tiny Greek Island. This is probably because daughter is in Greece at the moment. She will return no doubt bronzed and I hope relaxed. The last time I went to Greece I was about the same age as she is now but that was in another life......
So now you know what I am dreaming about.
On the health front, I am three days into HRT and feel a little nervous about it all and not sure why. I am changing from Oramorph to slow release morphine which apparently will be better as one doesn't need to take as much for efficacy. I have no idea if this is true or not as the doctor is going to work out how much I should take and it is going to take a while. I am sure the pharmacist would be able to make the calculation much more quickly but hey ho. He says I may need oramorph for a while for breakthrough pain so I guess it can take a while to get it all organised on appropriate levels. I hate changing meds on principle really as I just hate change full stop.
Tomorrow is a family function day, and I have that feeling when one doesn't want to go. There will be loads there, and its going to be outside and the weather is rain rain rain, so no doubt we will huddle under all manner of tarps and huddle in the garage, and in the house too, although its small. I know its all for a good reason a special birthday. Its OH's side of the family and boy can they drink. I probably sound all scrooge and doom, but as I feel completely exhausted already, the thought of going and watching everyone else get drunk is not filling me with joy. I am crap at small talk, utter crap at it. Dreadful at remembering distant relatives by marriage names and dread the 'and what do you do' questions. But I will put on my happy smiley relative face and answer three million times why I wear braces on various parts of me. As soon as the word Ehlers Danlos pops out of my mouth, eyes glaze over and I see people looking around wildly for more interesting people to talk to. So I shall find a seat, let them all clamber around me getting to the wine and see how it goes. You never go I might enjoy myself.
As you may have gathered I am in a bit of a grump. No particular reason, Although I am mega pissed off that one of our cats has not been seen for nearly a week. I think he overheard the conversation on the phone to the vet arranging the castration and thought, hell I am def not staying around for that scene, I'm moving on. Still hoping that he will come back ..... The other cat appears not to have noticed that he is not here. I love that about animals, if I had a half brother I would surely notice if he disappeared but this appears not to have registered at all. Odd then that Our other elderly cat was distraught last year when her son passed away. Perhaps because there still is another cat about its ok in cat world and they are just crap at counting.
Last Saturday I went with my goddaughter to a local food fayre which was extortionately expensive, the time spent with her was brillant and the Flamenco dancing was good, so will leave now with a photo. Which I really like apart from the bloody date on it, which for some reason was on all the photo's I took that day and totally spoilt most of them. But I must look on the bright side, it didn't rain and there were no drunk relatives there (at least not any of mine). Whilst the fayre was really very good and set in a beautiful location, I would prefer if truth be told to be at a Feria in Spain on my hols! The theme being The Med, so there was a lot of very delicious olive oil, chorro's? which is a delicious dunky pastry thingy dipped into chocolate, not good for the heart but so good for the soul. I have a picture of that too somewhere. I'll go and see if I can find it, if I do I shall pop that into too. I am normally a savoury type of girl but that day this was just the best thing.
I am currently trawling the net looking a holidays we can't afford. Trying to look at the ones we can and look at it as quality time together. Now that we are not bound by school holidays we can go when times are quieter which I like. I have a husband who likes things to stay on schedule, everything the same, he says he needs something to look forward to, so its my job to find the something to look forward to which is a much like home as possible. Whereas I would love to travel abroad. He will win on this one otherwise we wouldn't get to go together. I quite like the idea of a cottage somewhere but then think its all a lot of money to stay somewhere where its all someone elses stuff everywhere. I am not sure on a hotel experience as the ones I like the look of are inordinately expensive. I know we did enjoy the 'glamping' experience last year as it was accessible for me and out doory enough for the other half. I think then to myself humph perhaps its just easier to go on virtual holidays, tonight its been a tiny Greek Island. This is probably because daughter is in Greece at the moment. She will return no doubt bronzed and I hope relaxed. The last time I went to Greece I was about the same age as she is now but that was in another life......
So now you know what I am dreaming about.
On the health front, I am three days into HRT and feel a little nervous about it all and not sure why. I am changing from Oramorph to slow release morphine which apparently will be better as one doesn't need to take as much for efficacy. I have no idea if this is true or not as the doctor is going to work out how much I should take and it is going to take a while. I am sure the pharmacist would be able to make the calculation much more quickly but hey ho. He says I may need oramorph for a while for breakthrough pain so I guess it can take a while to get it all organised on appropriate levels. I hate changing meds on principle really as I just hate change full stop.
Tomorrow is a family function day, and I have that feeling when one doesn't want to go. There will be loads there, and its going to be outside and the weather is rain rain rain, so no doubt we will huddle under all manner of tarps and huddle in the garage, and in the house too, although its small. I know its all for a good reason a special birthday. Its OH's side of the family and boy can they drink. I probably sound all scrooge and doom, but as I feel completely exhausted already, the thought of going and watching everyone else get drunk is not filling me with joy. I am crap at small talk, utter crap at it. Dreadful at remembering distant relatives by marriage names and dread the 'and what do you do' questions. But I will put on my happy smiley relative face and answer three million times why I wear braces on various parts of me. As soon as the word Ehlers Danlos pops out of my mouth, eyes glaze over and I see people looking around wildly for more interesting people to talk to. So I shall find a seat, let them all clamber around me getting to the wine and see how it goes. You never go I might enjoy myself.
As you may have gathered I am in a bit of a grump. No particular reason, Although I am mega pissed off that one of our cats has not been seen for nearly a week. I think he overheard the conversation on the phone to the vet arranging the castration and thought, hell I am def not staying around for that scene, I'm moving on. Still hoping that he will come back ..... The other cat appears not to have noticed that he is not here. I love that about animals, if I had a half brother I would surely notice if he disappeared but this appears not to have registered at all. Odd then that Our other elderly cat was distraught last year when her son passed away. Perhaps because there still is another cat about its ok in cat world and they are just crap at counting.
Last Saturday I went with my goddaughter to a local food fayre which was extortionately expensive, the time spent with her was brillant and the Flamenco dancing was good, so will leave now with a photo. Which I really like apart from the bloody date on it, which for some reason was on all the photo's I took that day and totally spoilt most of them. But I must look on the bright side, it didn't rain and there were no drunk relatives there (at least not any of mine). Whilst the fayre was really very good and set in a beautiful location, I would prefer if truth be told to be at a Feria in Spain on my hols! The theme being The Med, so there was a lot of very delicious olive oil, chorro's? which is a delicious dunky pastry thingy dipped into chocolate, not good for the heart but so good for the soul. I have a picture of that too somewhere. I'll go and see if I can find it, if I do I shall pop that into too. I am normally a savoury type of girl but that day this was just the best thing.
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