Saturday, 30 May 2009

'J', being a nannie!, why, pj's

I thought I would try pink today, can't see too well anyway so may as well have a pretty post. I have spent so much time catching up on blogs I am following on occasion that I have completely forgotten what I was going to post about!! Its no good cannot see the pink so its this one. bla bla bla.....

So I will talk about my grandson instead....

Well had a really relaxing Bank Holiday Weekend, we had husbands grandson come to stay and for simplicity will refer to him as J or my grandson (aged 6 years) from now on, as he calls me Nanny or Nan anyway, which is something I am just getting used to still. Up until this weekend he used my christian name and referred to husband as Grandad. Its one of those complicated family scenario's which i may find myself mentioning or may not I am not sure yet.

However, the reason he has decided to call me Nan/Nanny is because he has a half brother whom we have never met (his father is not with his mother anymore ... my stepson) and his brother has only two nan's and it appears in the pecking order of life the more nannies you can acquire the more important you feel. Which bizarrely has appealed to my sense of humour !! It has however not appealed to my mother's sense of humour as my children (aged 18 & 16) have never been allowed to call her grannie/nannie or anything similar and when J announced that he was going to call her Grannie as she was old enough to be a proper one and that he called his younger Grannie's Nannie, she was not best pleased, I must say that I am still proud of myself that i kept a straight face and don't think I will ever forget the expression on my mother's face. I did however support him in his decision and spent the afternoon encouraging him to read to or draw a picture for Grannie! I am a nice person honestly.

It was a lovely weekend filled with the wonderful conversations that only a six year old can provide....

why?

.....being a major part of each one... so this weekend I have explained
why it gets dark at night, why it gets light in the morning, why the dog doesn't sit at the table to have his supper and why free range eggs yolks are very yellow, why the walls in the houses around here have flints as well as bricks, (which by the way took a very long time) and why sometimes its much better to ask Grandad complicated questions!!!!!

We rarely have the pleasure of his company despite the fact that when he comes he always asks for his pj's that he keeps here for overnight stays... this time it involved a quick dash to tesco's to get another pair and I am reliably informed that no 6 year old worth his salt or whatever the saying is needs a pair of Ben Ten PJ's! As the pair we keep here did not even begin to fit which proves how rarely he gets to come. I love him a great deal as when his father was little he spent a year living with us for very complicated reasons so it was like having his dad at a similar age. At the time I became a parent very quickly before mine were even born and with a couple of hours notice, he arrived on our doorstep to 'live' rather than 'stay' at weekends. All those years ago I did a great deal of growing up in a very short time but i would not have changed it for the world.

I cherish the time our 'J' visits whether it be for half an hour or for the four days/nights we had him this time. I worry about the complexities in his little life and we love stories and bubble baths and special big boy toothpaste! We made guitars from tissue boxes and elastic bands and went to a car boot sale and the local village fete, the latter being an odd experience for a little boy who normally resides in a very big city. He was not impressed with the games on offer at all and announced to all that the 'wack the rat' was not a rat but a stick with a bit of leather on it and that the books on the book stall were all second hand!

He was also extremely stoic about everyone asking who he was and where he was from, people are so unintentionally racist it amazes me still. His dad's mum (another nannie obviously lol) (my stepson) was adopted from Hong Kong when she was six months old. So when people ask where he comes from I say P.......... his city on the south coast and that shuts them up.

I also watched the Big Friendly Giant by Roald Dahl three times and read the same book 11 times!! Fortunately I kept all the children's books from when they were small and boy am I pleased my hoarding tendencies have come in useful.

I am exhausted and bendy EDS is major flaring but we had the best time and I just hope that we see him again sooner rather than later. So this blog entry is to say thank you to the little man for lighting up our lives and a thank you to his mum whom I don't know, for letting him come to stay. He had better come again soon anyway elst he will grow out of his Ben Ten pj's..... Possibly the loveliest thing he said was after a bath with warmed pj's on was... 'I feel all at home and my brain is as happy as a strawberry' bearing in mind he adores strawberries his brain must have been in a good place. Bless him.

Well that's my post, as must go and read the knitting blog where the woman who knits so much better than I and blogs about it! provides me with the inspiration to continue knitting which at this end is not going well, I appear to have the equivalent of writers block only with knitting but hey ho,here's hoping I will be able to understand the pattern in the book I bought in haste it seems from Amazon late one night! Wish me luck.



Thursday, 21 May 2009

Dentists

Commented on BG's post about dental work and having EDS (see benefitscroungingscum - always worry about mentioning BG's blog as she has strict copyright rules but reckon its ok to say I have read a post about something or other and then talk about my feelings on stuff - hope so anyway, I haven't quoted copied etc any content, so keeping my bendy fingers crossed thats ok) and found myself unable even to blog about how cross and frustrated I get with having EDS and lack of proper information for dentists, hopefully at some point I will return to this subject with a level head and hopefully the ability to write something half sensible on the subject!

Just to say I am a bit fragile on this at the minute having just had yet another tooth out and plenty of EDS ramifications to boot!


Tuesday, 19 May 2009

I have been reading blogs this evening, particularly this one http://thesecretlifeofamanicdepressive.wordpress.com/2009/05/17/absent-friends-heres-to-them/
am not sure that I have put that link in correctly. Some will have come across it due to the recent play on Radio 4. (Do's and Don'ts for the Mentally Interesting - Drama by Louise Ramsden about learning to live - and love - with bipolar disorder.) If anyone has access to be able to listen to it again as it is no longer available on iplayer that would be great as I listened to it but was distracted and now wish I had paid more attention. I have been reading the blog associated with it for over an hour now and am impressed how the author describes in heartbreaking detail her life.
, see The Guardian's review http://www.guardian.co.uk/culture/2009/may/08/radio-pick-of-the-day See blog list on the right.

In a previous post I wrote about a friend/relative who suffers severe with mental health problems and as I write I am aware that I am not up to date with what is politically correct terminology when discussing these issues. So forgive me if I make errors as I try to explain my concern.

Her psychiatrist whom she is currently seeing weekly is concerned she is having a breakdown. This worries me greatly as she has previously attempted suicide, I should say multiple attempts. He feels she should talk to her mother who has and feels she is unable to, for reasons I understand. Outwardly she shows no sign that all is not well and yet I find myself worrying, I am unsure whether I should text/ring her daily to see how she is. I am not sure what my role is, I can't say here what my role is in her life for fear of identification just to say it is one of responsibility sort of once removed. I realise that I have been worrying all weekend really and did text her and have not heard back. I shall contact her tomorrow and hopefully she will come over to share a cup of tea and to chat. My heart is heavy at the content of this chat and I worry so for her.

Much that would help would be a life change in personal living circumstances. It wouldn't change her sadness's but it would help immensely if changing her circumstances was something I could offer and money would help facilitate this change. Yet money is something I don't have an awful lot of. Normally lack of money doesn't bother me much but on occasions like these it does. Her condition has deteriorated due to stress as she along with her other co-workers is on half-time, so she is working three jobs to make ends meet. Working seven days a week with gaps of only a few hours in between each job. She is dreadfully tired and this does not help her mental health. If I could pay off her debts and pay her forthcoming MOT, etc... it would make so much difference. The silly thing is it would all be under three thousand pounds maybe a tad more... but I do not have that amount and I wish I did.

Hopefully tomorrow I will see her that at least would put my mind a little at rest.

Possibly a listening ear and kind heart may make a little difference... I fear not somehow as her sadness is deep and her heart stained with sorrow... she is going to be getting a CPN to keep an eye on her as her psychiatrist is going on holiday.... she will have trouble trusting a new person and I will try to encourage her to try... but she tries so hard already I wonder how much more 'trying' she can do. At least a broken leg can be mended.... I am a Leo and I wish I could bestow gifts on her and holidays and yet I feel even these things would not be enough but perhaps she could be sad in a better place and the better environment would have a small impact, in the meantime I can only offer her my love and support.... she is too young to be so sad and I wish I could make a difference.

Well one of the knitting books I had ordered arrived today.... good god what was I thinking. I do not think my skills are up to this one... its called blankets and throws to knit (patterns and piecing instructions for 100 knitted squares) On Amazon it looked so enticing and the throws so beautiful, perhaps it is me but the instructions to me may as well be in a foreign language perhaps I am just daunted and have cast it aside too quickly. I have a tendency to want to walk before I can run and am sure when I have calmed myself down I may perhaps attempt to knit one square to see how i get on! patience afterall is a virtue.... ho ho ho ha ha ha

I finally know why my eye hurts so so much having seen lovely consultant at renowned hospital. To cut a long saga about my eye short I have been moaning on and on for a long time about the mind blowing pain to do with my eyes and surrounds, it turns out apart from the Thygesons Keratisis, and recurrent corneal abrasions/erosions I have recurrent Shingles in eye/trimengial (sp) nerves which has caused PHN known as (watchout for dodgy spelling) Post herpatic Neuralgia. So I am not a hypochondriac afterall and yes it is very painful (not that I didn't know that already)

How happy I am that once again I have an incurable painful condition (PHN) and ehlers danlos, heavy sardonic sigh on this one, as I cheerily said to nice consultant... its ok I am well used to chronic/acute pain I am sure I will learn to manage it.

In reality its pissing me off more than I am letting on, the pain is relentless.

The corneal erosions/abrasions have been going on for three years now and discussed having a bandage contact lense fitted again if they do not stop which I am VERY reluctant to do as the last one ended up in a an A & E visit with the dratted thing stuck behind my eyeball somewhere and no flippin eye person around to do anything about it... apparently my lovely EDS means my eyeballs really do move about more than they should and the lense went with them but didn't come back. He said if they were to give me another one they would do it at this current hospital.... I will need a lot of persuading ,, apparently my cornea's have stretchy collagen too! Is there any part of me that hasn't some effect of having stretchy collagen fibres, I doubt it.

The weirdest thing is that it is affecting the nerve endings in my nose?I suppose thats the trimegal (sp) sorry its late - so much so my poor husband prior to diagnosis ended up looking up my nose with a torch (that's true love for you lol)to see if there was something stuck up there. For a while I wondered whether the pea I had popped up my nose as a very silly four year old had done some sort of damage, then I came to my senses....

The reason it took so long for a diagnosis is that whenever I had an appointment at hospital miles away it wasn't active, and not being a medical emergency I couldn't call an ambulance despite the fact that the pain I felt on occasion warranted it, so in the end I said I would send them a photo, so I did. I am sure this could should have been diagnosed locally, never mind. Anyway, tried to make this post short and now it isn't, at least I got it all off my chest.

Reading other blogs today it is amazing how many blogger's apologise for length of posts, I know its silly but sometimes I feel like keeping it on private, i wonder what I would write about then!!! I suppose its because I feel embarrassed sometimes that I write so much about myself, other blogs have far more intellectual content, political satire, etc. perhaps I will develop my blogging ability and move on into different genres, I doubt it somehow.

As for glamour gossip, the news this week that Katie and Peter had 'parted' did not surprise me. For a reasonably intelligent middle aged woman I actually like Katie Price, I don't care what people think of that or me for saying it. She has made millions and whilst I don't necessarily agree with some of the ways she has done it she is more intelligent than given credit in my humble opinion. I wonder if she possibly has body dysmorphia and sees something in the mirror that is not there? Peter on the other hand drives me mad & is another matter, perhaps it is meant to be like that but I cannot see why he is hailed as such a great guy. On watching the couple Stateside the 'row' in the shop was manufactured by him and she had it spot on when he was taking the piss out of the albeit extremely affected shop assistant and he was being immature and insincere, Katie was embarrassed by his childish behaviour. Katie actually only finally retorted when she had been pushed too far by his belittling, sexist comments when all she had done was asked him to stop behaving like a prat. He is too ready to berate her to his own end and I find him facile (sp) to the extreme, it was an argument and though I hate to admit it, I in adversity can retort absolute killer lines if being verbally attacked. If my husband continually called me a tart, undermined me called me stupid and told the world i was a moody cow i think I would finally snap. He is jealous to the extreme, he knew he was marrying a vivacious sometimes outrageous woman and he has been happy to 'live the life' I am sure he is a good father but I find the way he encourages his young son to 'get it on' with the girls and his conversations regarding them are dreadful. Katie is a caring and loving mother just not so gushy and OTT as he. I don't doubt she can be difficult but hey ho so can I, can he not see he behaves like a spoilt brat often, especially when he does not get his own way. They have chosen to live their lives in the public eye and I admit somewhat of a morbid fascination with it all, and don't apologise for it. So here I am sticking up for Katie, I like her and I don't care what anyone thinks about me for it. Doubt very very much Katie that you are reading this but this is a public post and I hope that you find happiness, with someone who respects you. Or you both find happiness together with some counselling or tough talking. Perhaps I am the only one in the world that sees it this way but on talking with a few female friend's my guess is not. I just hope Katie sees in a way that when she drinks she is not at her best and the Paparazzi are always ready to take the worst of picture's and also they love to put her down just like her husband does. mmm I suppose living life in the public eye has gained them a fortune but it seems it comes with very real downsides. Good luck Katy.

I watch a variety of TV programmes often when I can't sleep particularly, sometimes on watch again facilities and Katie and Peter is not the type of programme I normally watch, I suppose I like it because it is sometimes a bit too 'real' often depicting a life particularly the latest Stateside series that depicts family life and aspects of it which even though their live is far removed from mine in its nature with the ups an downs life brings. I wonder why I am apologising that I watch it, should I be embarrassed? The latest series however seemed to be deliberately setting Katie up for a fall and the footage seemed to favour Peter, I think it is a wise decision that she has dumped the management company, I am not entirely sure they haven't planned her demise. Only my personal thoughts though.

Feeling embarrassed again that I am prattling on about nothing in particular and others have a theme for standing up for disability etc.

I wonder sometimes at the media, particularly the tabloids, i know they only care about profits but I wonder if at some point in history there will be wake up call and they will see that they are inflicting the nation with purile rubbish.

edited to add.... interesting that Pete has a crap album just about to be released... he has been talking to the media.... apparantely katie sold pictures whilst in the Maldives so says a tabloid ha ha Interesting that only Peter is talking - perhaps his management company has told him to. Katie on the other hand is saying diddly squat - think that says it all really.






Monday, 11 May 2009

Seems I have popped in on a Sunday again. Well, survived Ikea. Although really desperately wanted to have a nap again in one of the stupendously tiny bedrooms which are oh so tidy. tee hee. Managed to get a disabled parking space which was a miracle as there are not too many. Mental note to self, Sunday is obviously the day the rest of the world go there also. Today I didn't mind however as I seemed to enjoy watching other people in their worlds - making decisions about their houses and what they want in them. Me being me, knew what we were going for before I left, which was good as the place is enormous and despite the arrows on the floor, my spacial awareness is not good and am sure I would still be there if it weren't for handy husband, who also is my person to whom I hang on to and rely on entirely for personal safety in busy places such as this. By the time we got to the area that sold bits and pieces that I really really needed to look at he was however bored bored bored and we left poste haste as despite him trying really dreadfully hard not to, his sighs were audible and afterall apart from some cheap furniture I had my candles, the essential items being the candles. On the way home I was pleased that we have a lovely old Volvo whose seats I may say are extremely comfortable. It amazes husband that regardless of the weather I love the heated seats. If I had my way I would have a Volvo seat in the house, heated and everything and have often wondered whether I should just sit in the car and read the papers. I am sure the neighbours wouldn't bat an eyelid, the only thing is I doubt I would get much reading done as all would stop for a chat and some would probably offer a cup of tea, and get in lest I felt lonely. It is a joy living in a village and as we have lived here so long know most people *apart from the fact as previously mentioned that I am rubbish at names..... but sometimes I long and am not sure why for anonymity, many years ago I did live in the city a few in fact but always returned to my rural roots, I start feeling more odd than usual if I am too far from a chicken.

Husband laughed at me earlier as i opened the front door and there sitting on a bucket was a sparrow who had fallen out of its nest. Its feathers were new born and scruffy and I don't know who was more astonished he or I. I fretted for ages as to his demise and bearing in mind the state of my back and general mobility at present - ever patient other half checked and checked again ... fortunately some hours later he found his wings. For some reason this small incident reminded me of the fragility of nature and the fight even the smallest and often unnoticed of birds who are in such decline go through to survive. We on the other hand in our modern world in the meantime are busy paving over our drives and driving the sparrow population to despair. I can't remember whether I have written of sparrows previously if I have and as I am mentioning them I probably have as I have a habit of repeating myself ( I think its the oramorph) we have thousands living in the overgrown bamboo outside the house, sparrow parliament the locals call it. I hope however they are talking more sense than ours are right now. I am so bored of hearing about plugs, lighting, reasons for spending money on second houses that I am starting to close my ears to it all. I guess its piss take overload or something or politician fatigue. I don't know really I do know though that if I had only a small portion of 'expenses' for living I know that on my list I would have one of those really quite tacky garden swing seats - I literally have become obsessed with wanting one. My joints are too derned rickety these days to sit on normal garden furniture and an unfortunate bout of thygesons keratitis means I am mega light sensitive. So had I one of these outside sofa's this afternoon I could have lounged to my hearts content, perhaps the sparrow on his virgin flight could have joined me for a rest instead of using the bucket for his perch, I would have gladly shared. So it doesn't matter to me really how long the second house or for some first then second then first again depending on their profiteering is going my needs are small compared to a politicians who it seems some are really needy with their essentials. No doubt though whilst we are all reading this drivel something awful is happening that we are missing, I have a hunch its a smoke screen cunningly disguised to deter the public from some far bigger far more outrageous scandal, but I expect that will be next weeks news.

Well I am signing off now as need meds, more sleep and eyes are giving out. So bloggy blog blog take care until we meet again.

Over and out.

Monday, 4 May 2009

A lovely lazy Sunday, papers litter the lounge yet am not minding in the slightest. How lucky to be able to relax with husband, we have been married so long now that sometimes the best of times are those when words are not required just silent harmony. Lucky us.