worry

Well I am not commenting anywhere today - too busy having a good old worry frankly.

Daughter with shingles turns out not to have that.

Urgent referral to Dermatologist Consultant who at appointment called in Senior Consultant.

Now tomorrow morning she is to have urgent skin biopsy.  Not the scrape kind, the horrible kind that requires stitches.  With EDS, stitches and local anasthetics may be problematical.  I am worried on lots of levels - will they believe her if the anasthetic doesn't work - I don't want them to accuse her of hysteria.  (This is a hangover from something that happened to me - note to self - do not pass on own neurosis to one's children, only apparently connective tissue disorders).  They say they know all about EDS, I must therefore have faith that they do.

They are also to take lots of photo's for their journals.

I am not a doctor. Could it be elastosis perforans serpignosa.  I am in a way hoping it is this because its not as hectic as it sounds.

All the other things they are getting concernced about are very hectic indeed.  So I am writing in my blog and I hope not coming across as neurotic in an endeavour to try and stop worrying.  She is having more and more blood drawn by the hour which is leaving her extremely bruised and the phlebotomist seemed to have no knowledge of EDS or she would have used a thin pediatric needle to avoid the pain and bruising.

If it isnt EPS and its something she doesn't want me to mention I will honour that and just post to say it wasn't EPS.  But in the meantime if you could send some healing whatsits over the wibbly wobbly web (don't worry commenting that you are just if you could spare a thought for her that would be nice) as she is most unwell and I am trying hard not to let on that I am worried.

The type of worried that is of the sort when one's child (despite her over 18 status) is ill and medical people are shaking heads and getting all serious.

I am sure Ivy's mum at @mythreeringcircus will have been through this type of 'worry' -

thesaurus entry mentions some of these words - in relation to 'worry'

anguish apprehension, care, concern, disquiet, distress, doubt, fear, torment, uncertainty, uneasiness, vexation and woe.

Take your pick - on some level or other I have most of these mixed up amongst my worry.