Below is a link highlighting the lack of early detection of bone density problems and EDS. I am 44 soon to be 45 and last year broke my hand. Yes it hurt but I was surpised when results of a bone density scan were so poor. I now have to take alendronic acid once a week which is a pain as it must be taken on an empty stomach and you have to sit upright and eat or drink nothing for ages afterward. I also take a daily dose of Calceos. (calcium and vit d combination). Had I known my bone density was so bad I may have been able to avoid osteoporosis. My opinion is that on diagnosis of EDS bone density scans should be a matter of course. Fat chance I think this will ever happen.
www.philstar.com/Article.aspx?articleId=438330&publicationSubCategoryId=64
As I write dawn is breaking and I have had little sleep. Other half will wake in about an hour and a half and will go to the kitchen to put on the kettle. There he will scan the surrounds to see evidence of whether I have slept or not. The kettle will be warm, he will check pain meds, and me. I will undoubtedly not be a pretty sight. In a week or so it is our 20th wedding anniversary.
My cat has been staring at me for over half an hour and the dog my beautiful staffie is snoring and lying on his back with his legs in the air.
The font won't change but I don't care.
It is supposed to be summer and the clouds are fast moving and black, the rain is tropical and it is very windy. I am worried about daughter, she seems low in spirit and in pain. Letting go and allowing one's kid's to be adults is hard when at 19 it only seems a moment ago I held her in my arms and protected her with all my heart a tiny 6 pound baby. I still hold her in my heart and watch as she grows more beautiful. But the grown up world is tough I think, I know I can't stop time but if I had a choice I would give her the perfect life where nothing absolutely nothing ever made her sad. I know this to be a completely unrealistic notion but if I could it would be that way.
Next week I have grandson to stay for a week, this I don't mind at all. I do mind that no-one spoke to me about the arrangements and it seems I won't have a car as husband's is having an expensive 'fix'. humph...... for the record do not buy a volvo xc awd 2001 it seems a design fault with something called the viscous coupling? means it needs replacing, we are getting a re-conditioned part from Sweden and second hand this will cost £500.00. Great - car is comfortable sure but definately not the old old old reliable volvo 950 that we used to have. Thus far this year this car has cost us in the region of nearly two thousand I think. I am not best pleased. Husband is a gardener so we do need the awd but am beginning to think the old ways were the best - donkey and cart maybe!!
Well off to try that sleep thing again.
I hope to dream of sunshine and rainbows ...... hopefully a new camera for my birthday as mine is all broke but shhhh don't say its a secret........
1 comment:
Regarding the bone density scan, I live in Canada, and I'm only 22, but my doctor sent me for a bone density scan already over a year ago, because of the EDS, combined with the number of bones I've broken (18 bones, several of them numerous times). I haven't experiened the medical system in any other country, but from what I've hears Sweden and Denmark are good places to live if you have EDS.
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