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As I write the tips of my fingers are tingling and not in a nice way I must say.

I have added to my google reader a few more blogs of late a couple of which humble me in the authors ability to write simply and yet able to get across to the reader - an emotion, an experience, a thought ...... so well. I find myself humbled.

Sometimes I am reading by way of pain distraction and leave the daily/weekly post of some one's life whom I have never met nor am likely to feeling empathy that I find difficult to put into words. Occasionally the content means I absolutely have to check my reader to find out how things are going. The Internet has opened up a whole new world for me when sometimes mine can be a little small.

For some reason I am attracted to Australian/Tasmanian/NZ bloggers who seem to me to have a refreshing frankness often lacking in UK blogs. (no offence to UK bloggers its just a current personal preference) Although my geography is dreadful having been thrown out of geography lessons at the convent I attended by a nun who found out that I along with a bunch of other girls were slipping spirits from our parent's drinks cabinets into our flasks to accompany our packed lunches. This was obviously very bad behaviour indeed and I have completely forgiven the snitch (not) who dobbed us in - we were afterall fourth formers trusted to eat our lunch in a room in the eaves away from the rest of the school in a cold attic room where a drop of brandy in our coffee seemed entirely appropriate. I now understand that this was a complete breach of trust and understand that our behaviour was reprehensible...... Why that meant I couldn't attend geography lessons I will never know and I never discussed it with my parents as my guess is as they were paying the fees they would have had something to say about my lack of geography tuition. At the time I didn't mind, I disliked geography probably because of the sister who taught us about the world! She claimed that I would 'infect' the other girl's with what I didn't really know or care as it meant that I got to sit in a very cosy armchair in the library reading, an activity I much preferred to Geography. In retrospect I feel the gap in my education shows. I digress as ever So I guess I am really saying thank you to other bloggers who do not know it but when my house sleeps and I am not, are providing a constant stream of 'other world's' which often make me laugh out loud and in the next breath cry. A snapshot of lives which are not mine I am privileged to share.

At the minute I am going through one of those phases where I think perhaps I should visit the doctor. But know that I will not as I would simply be providing him with a list of things which he can do absolutely nothing about. So by way of blog moan to save the NHS -
MY LIST
These things hurt -

hips
knees
thumbs
hand that broke year ago
sacro iliac place (sp)
neck
a pain I can't really describe in my chest

OK there is more but am boring myself... and also think I may have blogged similarily previously! Perhaps I could go to the Pain Management Clinic and see the scary physio who had not looked at my notes and as I was trying politely to explain about my EDS and without meaning to sound ungrateful turning down a few of her ridiculous suggestions as to ways to combat my condition (circuit training to give an example) she shouted at me ARE YOU JUST HERE TO GET MORE DRUGS... to this day I am still quite proud of my reaction. I won't go into it here but suffice to say I was extremely polite and she left the room.

I then promptly burst into tears of frustration... some time later the nice 'important' consultant man came into the room and apologised explaining she had recently started working at the pain clinic bla bla bla.....

In the meantime two other physios whom I had previously seen for periods of over 1-2 years in blocks of 12 week sessions elongated each time by clever massaging of referrals and therefore NHS statistics, came in and chatted with the door open, handing me tissue's for my childish tears. Bearing in mind they both actually know me well they knew I am SO NOT a drug requester.... they asked after my children and my husband and we even laughed together how despite their very best efforts I would never meet the statistics required for a modern physiotherapy department which means they could discharge me and I would be better. A six week blast of physio does not cure EDS, both hugged me gently but affectionately. Their kindness I will always remember I hope they educated the 'nasty one' about EDS but there is something inside me which thinks she will always remain somewhat rude, dismissive, cruel, uncaring and if I say so myself in a very bitchy fashion unattractive. My husband felt I should have made a formal complaint but if I complained each time my EDS was misunderstood and me along with it in an NHS setting my life would be filled with complaining. So instead I moan here and it helps! Probably because I can do so without prejudice.... I hope.