Well a new referral to a neurologist.
In brief my left foot drags. I wonder what this new consultant will say. Will I be compliant on the day I wonder and give an appropriate medical history. I am wary of new consultants, will they have a knowledge of Ehlers Danlos. I didn't ask for the referral anyway. I went to the gp with earache, except its not a classic earache - following the flu virus some five weeks ago now I went deaf. Normally in these circumstances my ear drum perforates - painful but a blessed relief when it happens. Where is this infection stuck - somewhere. Antiobiotics are making no difference and I cannot hear the phone ring. Please could I just have a virus - get better and get on with life!
The foot drop/drag thingy came as an aside. With EDS minor inconveniences such as this can go unnoticed. Osteopinic me You see when one's knees crunch, creak, dislocate, ankles lie flat on the ground, hips rotate and sublux, lower back has osteoarthritis, spine has bulging discs, shoulders dislocate, neck arghhhhh, elbows back bend and do their thing, wrists over pronate and thats fun, thumbs, fingers dislocate. Post herpatic neuraliga you know that suicide pain thing I love to have. Well with all that walking is fun most days anyhow. So a bit of foot drag/drop is nothing to me. I have deliberately left out muscle stuff - well thats just boring isn't it.
What will a neurologist make of it I wonder. I saw a neurophysiologist once who was the brainiest person I have met. His technician attached me to the machine to test muscle firings - that was fine it seemed it was the ehlers danlos that made my fingers claw and all that crappy stuff. I wonder again whether they will do that again but on my leg? Probably they will say mmmm thats weird.
Any ideas anyone what could be causing it. It would save me the trip to new consultant. As some may know I am adverse to hospitals and consultants, years of misunderstandings and labels of things that I am not make me this way.
I am too tired to give a succinct medical history. I feel like saying you get paid - a lot - learn about the condition.
But this symptom may not be related to the EDS. I am not prone to googling what it may be, who am I to know.
So bloggy friends - what do you think it is? Husband says I must attend and not cancel appointment. So I had better go. Hopefully there will be a long wait and it will go away and I won't have to go!
Thus far I have had the following suggestions!
From a relative - oh that will be MS your uncle - you know the one you have never met has that.
From a friend - its probably a mini stroke- or lots of mini strokes (do lots of mini ones make a big one I wondered).
From a passer by in the street a stranger by the way - did you know there is something wrong with your leg? no diagnosis.
From husband - I don't know but it makes you walk even slower than ever.
Me - don't give a shit frankly except I am falling over more often.
So bloggy people - any ideas? No obligation to comment.
7 comments:
Ummmmmmmm....
Maybe EDSy tendon stuff? You know, like a tendon has finally lost any pretence of actual holding togetherness and given up entirely?
I have no idea truly. I suspect the Neuro will go 'Hmmmm, that's weird'.
Hello there! Thank you for your comment on the Biopsy Report and on A.U., about your father's recent diagnosis. I have suffered from this affliction since early childhood and if I can be of any help to your dad in any way, I will surely try!
Sorry to read about your foot (and the sudden deafness!) but after reading through some of your postings, I feel the comment from Veronica (above) sounds extremely plausible?
Here's hoping you find out what's causing both problems soon.
sorry achelois that your suffering more right now. i dont have any ideas why that could be. i would be a nag and say go to the neuro. i can understand your dislike of doctors ive only had three years of this, i imagine youve had a lot longer. hope your daughters ok too. xxxx
A sudden hearing loss? That is odd. Of course MS comes to mind but that is because *I have MS so pay no attention to me.
I don't have foot drop OR a hearing loss due to MS by the way but I am deaf and have MS. :-<
We need a break from problems.
I predict that you'll have to have a brain scan.
I totally understand your reluctance to see another consultant but it's important to have these latest symptoms investigated so that hopefully, any sinister causes can be ruled out.
Whenever I've to see a new specialist, I always think through beforehand all the things I want to cover. That way, I go into the consultation relaxed in the knowledge that I won't forget anything important on the day.
I wish you the best of luck!
Hi Steph - thank you have commented on your comment in next post. A plan I am not sure is working!
I am too tired to give a succinct medical history. I feel like saying you get paid - a lot - learn about the condition.
That is how I feel when I am discussing the medical profession with Veronica xox
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