Am not sure....

I am not sure I shall use titles too often, I waste too much time trying to think of something witty, mildy intellectual etc. All of things I am not really.. I shall see how I feel as time passes.

As this is my first real post, in my imagination I had thought that I would write in an abstract way about life living with Ehlers-Danlos. However in reality I am so completely pooped having got this far that I think I shall write a list. To give me food for thought...

Its more words really as I am not a good list person..

Today I smiled, I have cried, I laughed and I felt my brain nearly explode (please note - it did not it just felt as though it may) from previous experience I know it won't, its a pain thing I guess. I used distraction techniques and planned to achieve great things, which didn't materialize. I did waste a good deal of time this evening looking at old photos on poorly labelled discs. I am unorganized so what appeared to be Xmas 2004 turned out to be a family barbecue, where I cringed as I played a short video that number one son had made and guess what it starred me.. I hate my photo being taken at the best of times so this phone history of me, looking nothing like my image of myself, I had thought I was far younger looking and a hundred times more attractive... made me at least pleased I have kept at least one new years resolution and that was too keep up a reasonable haircut.

For my thoughts - I wonder when I will get the results of brain MRI - the pain is unbearable now. So what is unbearable, its not true its unbearable all of the time, last night at about nine o clock I seriously contemplated calling an ambulance, which I have only ever done once. I then thought that perhaps an incoherent mumbling eds patient, saying I just can't stand it would not really get me anywhere and that I have available to me such strong pain relieving medication that there was really no point. So I got all stoic with myself and got on with a night of no valuable sleep and very odd dreams due to medication. If spaghetti exploding out of my head has any significance to anyone who interprets dreams please do let me know.

I have also decided not to obsess about grammar and spelling elst I shall never write anything. I imagine I will often write as a distraction process so please don't expect much. This blog is mainly for me and I hope a couple of other bendies like me, who will often be able to read between the lines of nonsense at the reality of my situation.

Ok that's enough for now... how this blog develops is anyone's guess. nb I don't really understand the labels thing yet...